June
Cavernoma Awareness Month
14th June - Cavernoma Awareness Day
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🔴 Ireland turned red for
Cavernoma Awareness Day
On 14 June, buildings and landmarks across Ireland lit up red for Cavernoma Awareness Day, helping to raise awareness of cavernoma and the impact it has on people living with the condition and their families.
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For the first time, councils and communities across Ireland came together to support this awareness campaign, showing that people affected by cavernoma are not alone.
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We are incredibly grateful to all the local authorities and organisations who supported Cavernoma Awareness Day by illuminating buildings and sharing our message.
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Locations that took part included:
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🔴 Cavan – Courthouse
🔴 Carlow – Tullow Street, Hanover Park, Barrack Street, Athy Road at the Garda Station opposite County Buildings, Liberty Tree and Ducketts Grove
🔴 Cork – County Hall
🔴 Donegal – Public Service Centres across Letterkenny, Milford, Dungloe, Lifford, Donegal Town, Carndonagh and County House Lifford
🔴 Galway – County Hall
🔴 Waterford – City Hall
🔴 Kildare – Virtual illumination of Áras Chill Dara
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We would like to thank everyone who took photos, shared images, and helped spread awareness. Every red light helped shine a spotlight on cavernoma across Ireland.
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We are continuing to add photographs from the evening as they come in.
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A huge thank you to all the councils, staff, members, families, and supporters who helped make Cavernoma Awareness Day a meaningful moment for the cavernoma community.
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Annual In-Person Event
On Saturday, 13th June 2026
Carmichael Centre, North Brunswick Street, Dublin 7
Cavernoma Ireland's Annual In-Person Awareness Event took place at the Carmichael Centre, Dublin, on 14th June as part of Cavernoma Awareness Month. The event brought together people affected by cavernoma, along with family members, caregivers, friends and supporters, for an afternoon of learning, connection and shared experiences.
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A special thank you to Mr Gulam Zilani, Consultant Vascular Neurosurgeon at Beaumont Hospital, who delivered an insightful presentation on cavernoma from a neurosurgeon's perspective. His expertise and willingness to engage with attendees were greatly appreciated by everyone present.
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We would also like to thank Larry Cuffe, Cavernoma Ireland's Risk Assessment Officer, who presented an update on current research into potential non-surgical cavernoma treatments on behalf of our Science & Research Officer, Charlotte Cuffe, who was unfortunately unable to attend. It was encouraging to hear about the important research taking place internationally and the hope it offers to those affected by cavernoma.
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The event provided a valuable opportunity for attendees to connect with others who understand the challenges of living with cavernoma, share experiences and learn more about current developments in treatment and research.
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Events such as these play an important role in raising awareness, building connections and ensuring that nobody affected by cavernoma feels alone. We thank everyone who attended and contributed to such a positive, informative and supportive afternoon.
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We look forward to welcoming even more members of the cavernoma community to future events. Together, we can continue to raise awareness, support one another and give a stronger voice to everyone affected by cavernoma.