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Become a Member

Join a growing community of people affected by cavernoma in Ireland.

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Whether you are affected by cavernoma, a family member, carer or supporter, become a member of Cavernoma Ireland and be part of a community that understands.

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Membership is free.

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Join us, stay connected, get involved and have your say in the future of Cavernoma Ireland.

As a member, you can...

Connect with others

 

Connect with people across Ireland who understand what it is like to live with cavernoma or support someone who does.

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Members can join our private Facebook and WhatsApp groups to share experiences, ask questions and stay connected with others in the community.

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Stay informed

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Receive Cavernoma Ireland news, updates and information directly by email, so you can keep up to date with what's happening across our community.

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Join Coffee & Catch-Up

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Everyone is welcome at our Coffee & Catch-Up sessions.

As a member, you'll receive the link by email automatically, without having to request it.

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Hear about events first

 

Members receive invitations and registration details before events are advertised publicly.​

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Get involved

 

Take part in awareness campaigns, educational activities and other initiatives that help raise awareness of cavernoma in Ireland.

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Have your voice heard

 

Your voice matters.

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As a member, you can have your say in the future of Cavernoma Ireland, including voting at our Annual General Meetings and Extraordinary General Meetings.

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Make a difference

 

Your membership helps ensure that the voices of people affected by cavernoma are heard.

Help us build a stronger community

Cavernoma Ireland is growing, and every member helps us build a clearer picture of the cavernoma community in Ireland - who we are, where we are and what people affected by cavernoma need.

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A growing membership helps us:

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  • Raise awareness of cavernoma across Ireland.

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  • Give people affected by cavernoma a stronger collective voice.

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  • Develop information, activities and support based on what our community needs.

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  • Demonstrate the need for our work when applying for funding.

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  • Build a strong and sustainable organisation for the future.

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The more people who join, the stronger our community and our voice become.

Join Cavernoma Ireland Today

​​Membership is free.

Join us and be part of our growing community.

We only collect the information needed to manage your membership and keep you connected with Cavernoma Ireland.

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Your information is stored securely and handled in accordance with our privacy and data protection requirements.

Support is available to everyone.

You don't need to be a member to access support from Cavernoma Ireland.

If you're looking for support, information or someone to talk to, visit our Support page.

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© Copyright 2026 Cavernoma Ireland. All Rights Reserved. 

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 Registered Charity Number: 20207090

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